I continue the crusade to persuade everyone (myself
included) that I am not just lazy, something is wrong. It’s been a full couple
of weeks with a new team.
It started with a trip to my family doctor and an hour of
dialogue with his nurse practitioner who actually heard me, when I said
‘something is wrong’. She asked a ton of questions and I walked away with a
req’ for an ultrasound, a handful for blood work and an appointment to send a
scope down my throat to see everything along the way.
I’ve been having chest pain, heart burn and trouble
swallowing for the past couple of months, enough that I need that resolved
before I can be well. Not everyone knows, but I have a long history with
Bulimia and without knowing it*... caused a lot of damage to my esophagus. The scope should check the scar tissue and
damages and go all the way into my stomach to see what’s causing all the
trouble.
Waiting for the results I find myself hoping for something,
something to show I am not lazy, but sick... something to fix.
I headed to a new Naturopath as well, someone closer to home
with more knowledge of thyroids. We met and I fell in love, she explained all
my tests, the why, the how and the fix. My blood work (outside of my thyroid)
is good. She couldn’t understand why we weren’t doing something to reverse the
APO level from my previous test and she agreed to start me on NDT asap. She
also gave me homework, to track my basal body temperature (which she shared was
the most accurate way to track a thyroid disorder (over bloodwork) and no one
ever told me). I walked away with a handful of supplements and a plan. It felt
good.
It helped that in the same day I started with a new Psychotherapist,
one that specializes in Cognitive Behavioural Therapy, which you know I have
tried and failed at before. I love her too; she shares her notes with me, makes
a plan and hears me. I don’t know if it took me going to several to learn the
process and manage my expectations or if she just found a way to include me. I
feel like WE have a plan and a goal, I am not just blindly following her and
hoping for the best.... which is what I have done in the past.
I have had the ultrasound on my thyroid and as turns out,
there are some things seriously wrong, it’s misshapen, rough textured and there
are a lot of nodules throughout my neck. I haven’t had my follow up, but have
been emailed by both my doctors to say, ‘it’s
not cancer’, but it is something to discuss. THIS is exactly what I needed,
because Google said ‘suspected Cancer,
more tests required’ which made for a very long afternoon.
Since my appointment I have switched to NDT (2 in the
morning and 1 in the evening), I take thyroid support, adrenaline support and
something else I don’t completely understand. I also track my temperature 3
times a day and am blown away by the results; I average the mid 96s, a ‘normal’
person averages 98.6. No wonder I am always cold... the furnace isn’t running,
or it wasn’t. Since starting all of this 3 weeks ago, I am getting to normal
and it’s so confusing to be hot all the time (or what seems hot to me).
I am trying to track all the changes as my body adjusts to a
functional thyroid. I did weigh in with an unexpected loss, for the first time
in months. I am not frantic about it being a mistake and despite my best
efforts am weighing myself with more frequency to stay on top of it. I never
thought I would be afraid of losing weight, but I genuinely feel fear every morning
and afternoon... what if it was a fluke and I have gained it all back and then
some (something I am used too). What if my body catches on to the new plan and
sabotages it again and again. It feels hopeless, but not in a dramatic life
altering way, more of an acceptance – nothing works. It never might.
For the most part my mood has been better; I don’t feel as
lost and worthless. I don’t feel as foggy, but I have my bad days.
I went for the scope consultation with a new doctor who was
rude and dismissive. She made me feel small and petty for even wanting to have
the scope. I felt like she, and everyone I cross paths with, is judging the
validity of claims, when they’re thinking... she’s a failure. If I would stop
failing at everything, I wouldn’t need all these extra tests, specialists and
demands. I had a full blown meltdown on the phone with Richard, he’s so good.
So that’s the update; I go next week to have my scope, get
my B12 shot and get my homework checked on my CBT, which was a lot of emotional
paperwork, that I also feel like I failed at.
UPDATE: I did not fail at the paperwork, in fact I did it
very well and changed the direction of my treatment (that’s for another post).
Yours in Health-esque,
Melanie
*I knew, but was in denial
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